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1332 days ago
Avery's funeral will be on Saturday, April 8, 2006 at 12:00 noon at Families First Funeral Home and Tribute Centre. The address is 3260 Dougall Avenue and the phone number is 519-969-5841. Avery looks forward to seeing you all there. Lauren
1334 days ago
Avery passed away last night. She was 17 days old. She was so strong, but we asked too much of her. I know she is happier now. She looked so absolutely beautiful and so peaceful when they brought her to me to hold her. I never wanted to give her back. I kept her for so long. It was so great to see her face without her tubes. She is not suffering anymore. I thought it might be strange to hold her when she was gone, but it felt so amazing. I don't know if someone's heart can break more than this, but somehow I can be happy, because I know that Avery is now. She really is our Angel Avery. I will let you know when funeral arrangements have been made. Thank you everyone for following our journey. Lauren
1335 days ago
I know everyone has been waiting for an update. I can write now because a procedure is going on in Avery's room and I have been kicked out for an hour. This at a time when all I want to do is spend time with my daughter. Friday night Avery seemed to be doing a bit better. She kept having instances of desaturations, but that was nothing new. However, the doctors began talking more and more about ECMO, so that if Avery had to be put on it, it wouldn't be in an emergency situation. In the last 7 years, only 4 CDH babies have had to go on ECMO here...so talking about it meant that things were starting to get serious. Unfortunately, Saturday morning as I was getting out of the shower, the hospital called. Avery was being put on ECMO and it was an emergency. Although I was terrified, I was not prepared for what happened when we got to the hospital. We were told to call people from Windsor and tell them to come. My dad flew in, and my Nana came from Florida. Senior ...1339 days ago
Avery got her first haircut today. I cried when we got to the hospital this morning and the nurse handed me a little specimen container with locks of her hair. As you can see in the pictures, she has barely any hair on top, but on the sides and in the back, it is really long! Well anyway, the doctors had to put an IV in her head because they couldn't get a line anywhere else since she is so swollen. So they had to shave off part of her hair on the side. It was a little emotional for me, lol...but I guess in the grand scheme of things, that's the least of our worries. Avery had a relatively quiet day today, which was good. There was only one incident where her SATS dropped she recovered from it pretty well. She is still on 90% oxygen and a high mean airway pressure of 20, but we are pretty proud of how tough she's been today. Everyone pretty much left her alone until 7pm tonight when they decided to tap her chest and drain some fluid. You should see how much fluid ...
1340 days ago
Avery has had a very rough last couple of days. She keeps having episodes where all of her SATS go down and it takes her a while to recover from that. Although today she seemed to hold her own, she continues to be on maximum support from the oscillator. She is on 100% oxygen, her mean airway pressure is at 18 (they would like this to be below 16,) she is at 20 for her nitric oxide (we need to eliminate this...when she was born it was only at 10,) and she is still requiring the pavilon (basically a paralyser) and fentynol before anyone touches her. Avery didn't have any major episodes today until about 5:00pm. This is good because she was actually put through a great deal today. She had her morning xray done. She had an echocardiogram done in the morning, because the doctors needed to confirm that the duct that I discussed before, was still closed. They now want it open, because she has a slight dysfunction of her right ventricle. It is having to work too hard ...
